I have spent every day since his diagnosis wanting to help raise awareness and help educate other parents about craniosynostosis. My Husband and I spent so many months wondering what we were dealing with and feeling brushed off by Owen's first pediatrician. He insisted it was positional plagiocephaly and nothing more. He made me feel like I was crazy and that I was obsessing over nothing, but I knew in my heart that I wasn't obsessing over nothing. I knew something was wrong. I think as a medical professional he should have sent us for a 2nd opinion just to make sure everything was okay instead of making us demand one like we had to. Positional plagiocephaly and craniosynostosis can be very similar but there are also huge differences. Owen showed every sign of craniosynostosis but yet his pediatrician never took it seriously enough.
I am a firm believer that there is no instinct stronger than a Mother's intuition. I knew without a doubt in my mind that something was wrong. Did I want to believe there was something wrong? No, of course not. Of course I wanted to trust what his Doctor told me was true, but my heart told me otherwise.
To have my sweet Owen selected as the Cranio Kid of the Month after the struggles he's had during this year, it's a huge honor. We are so proud of the obstacles our little boy has tackled. He is a true hero. He's not even 15 months old yet and he's already faced so much! Thank you to those who selected my boy for this honor. We are so blessed to be a part of such an amazing and support community. From day one the Cranio community has been like family to us.
Check out www.cappskids.org and you can also purchase their 2012 calendar. Owen and I are featured on the page with pictures of cranio kids and their parents and Owen is also featured on a page in his Steelers jersey.
6 months post-op! Can't believe it!
My little boy and his precious smile. <3
a side view of his head - I swear it changes on a daily basis.
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