It's incredible how the time before surgery seemed to crawl. I spent every day just praying it would come already and we could get it over with and move forward with our lives. When you have something so huge, like your child's impending surgery just hanging over your head, it's a nightmare.
We had Owen's 1 year birthday pictures done a few weekends ago. His head tilt seems to come and go. It's been perfect the last few days but the day of pictures he was really tired and he definitely seems to do the tilt more when he is tired. I worry constantly about it and I wonder if we shouldn't have stopped therapy, but I know we had done everything there that we could and we can continue his exercises at home. I truly believe his tilt is related to a habit, something he's just used to doing, than an issue. Only time will tell, I guess.
Last Thursday he had a check-up with his plastic surgeon. Dr. Murthy is an incredible person and everyone in his office is amazing. I cannot say enough wonderful things about them. How do you thank the man who gave your son the normal life he should've been born with? He's a special person in our heart. Dr. Murthy smiled from ear to ear the entire time he examined Owen. He kept saying how amazing he looked and how incredible it is to know he just had surgery 5 months ago. Owen will go back in 6 months and he'll have a follow-up CT, just to check on the sutures and to make sure everything is healing correctly from surgery. I believe, if I understood the Doctor correctly, we'll go to yearly appointments after that.
As you can see, Owen is a very busy little boy. 13 months old now and growing like a weed. I swear he changes in little (and big) ways every day. He's trying to say new words. His favorite word is "Hi" and he says mama, dada, bear, ball and duck. He's walking so much better now. We even tried his first pair of shoes on him. He was a little unsure of them, but he's doing better with walking in them.
He's dressing as a monkey for Halloween. I am so excited to finally take him out this year. Last year he was barely 6 weeks old and he had already had his first flare up with asthma so we decided not to risk it and we kept him home. We're already at the end of October and so far, so good as far as his asthma. I am praying this year will be a better year now that we know what we're dealing with and we have medicine to help control it.
Being his Mother is my ultimate joy in my life. Handing him over to the surgeon's was one of the hardest moments in my life, but I knew I was doing it for him. He doesn't know it now, but I pray he will some day.
I don't know what the future holds and I don't know what this condition may or may not do to him in the future, but I do know he's here now, alive and well, and each day with him is a gift.
I love you so much, little man. <3
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